Queen of the Distracted

Imagine life in a house with 6 kids - now imagine if 5 of those kids and their father have ADD/ADHD (Attention Deficit Hyperactivity Disorder) - that is our house! Welcome to an inside view of my life and our home dominated by ADHD... THERE IS NEVER A DULL MOMENT!

Ladies and Gentlemen! Boys and Girls!

"Ladies and Gentlemen, Boys and Girls!"

Those were our oldest daughter Rachel's first words, from the time she was a toddler she would belt them out proudly standing on the arm of the couch. At the time we had no idea what ADHD was or that it would play such a central roll in our lives.

Since then we have learned a lot, not the least of which is how many individuals and families suffer in silence. We have experienced first hand how misunderstood and misrepresented a disorder can be.

As a family we decided to take action - to risk embarrassment and labeling to get this important message out to the world. Come join our family, share in our lives, and see ADD/ADHD as we see it...
A gift with a heavy price tag.

WELCOME to life in the ADD/ADHD House!

Showing posts with label communication. Show all posts
Showing posts with label communication. Show all posts

Sunday, September 15, 2013

Finding Patience in the ADHD House - Just Keep Swimming

My husband, the Distracted King, thought I should entitle this post Just Keep Swimming, after Dory in
Finding Nemo. At first I wasn't sure about that, though, the more I thought about the patience it takes to raise a house full of ADHDers I did think I can completely relate to Dory. Sometimes, most times, life in my house is overwhelming and the answer really is, "just keep swimming."

I was recently asked how I have the patience to deal with so many ADHDers under one roof. The answer is complicated. It was certainly too complicated for the 140 characters at a time that twitter provides. The answer is, I am not always patient, ask my husband and kids. They will
certainly attest to it, but, I am mostly patient because I have learned the value of it. How did I learn, by being impatient and figuring out it made things worse for both them and me. I look at the goal of parenting as a very long term far reaching goal.

I want my kids to be healthy, to love who they are and embrace it, to be good-hearted people who want to make a positive change in the world.  I want them to have to skills to do that. I don't want to crush who they are, their spirit, I want to empower them to live up to their strengths and conquer their weaknesses. Conquering doesn't mean getting rid of, by the way, I believe it means learning to work with, around, over whatever it takes to deal with them so that their weaknesses don't keep them from using their strengths. Yes, do I want to them to learn social skills, maybe not so many that they completely repress everything that pops into their mind to say or do, but enough to be able to choose when to filter their thoughts and actions to best serve the needs of the situation.

I believe that the daily goal of parenting should be to keep the end goal in mind - do what will help them not just today but down the road. Keeping the goal in mind is what changed the way I parent day to day. So, these are the things that I try to keep in mind day to day to make that work.

Unconditional Love 

People define love in so many ways but when I  parent I have to start with unconditional love - I love regardless. Regardless of inabilities, weaknesses, frailties. I love when they are successful and when they are not. I love them just as much when they make us proud as when they embarrass us. And most importantly I make sure that THEY know that I love them regardless. That I love them, love them absolutely, completely separate and independent of their actions.

Accept your child for where they are at now, today. 

It is easy to get caught up in what we think that our kids should be able to do at certain ages. Our expectation of where they should be can't and shouldn't cloud our acceptance and acknowledgement of where they are now. To help our children make progress in any area of life I have found I have to know and accept where they really are right now. Being honest with where that is changes perspective and makes progress really possible.

For example, our daughter with dyslexia, dysgraphia, dyspraxia, and ADHD got advanced on her state testing this last year in English/Language Arts. A far cry from when she was in the 5th grade reading at a first/second grade level. Her progress started when we were able to be honest about where she really was, then we could help her. She still has all the same disorders but she has learned, is still learning, how to overcome them. It goes the same for any habit, any social skill, any weakness. Be honest and accept where they are today so that you can work on changing tomorrow.

Redefine normal as normal for us

This goes hand in hand with being honest about where things really are.  Abandon "normal" and embrace who they are. It is easy to get caught up in what society says is normal and expect that for our own lives. What follows are feeling of frustration and failure because we aren't experiencing "normal."

Here is our normal. It is normal for us to take at least 2 hours to get ready to leave the house to go somewhere. It is normal for us to get over stimulated in crowds and need a break. It is normal for our house to be driven by creativity which spills out in everything we do and are. It is normal for us to get easily frustrated and meltdown. It is normal for us to be on or off, completely engaged and passionate or totally uninterested. It is normal for us to forget, even seconds after being reminded. It is normal for change, even the slightest change, even a good change to rock the world and make it momentarily unmanageable. It is normal for us to be captured by an idea and need to record it so we don't lose its brilliance forever. It is normal to be distracted by anything and everything that is more appealing to think about or do. It is normal for the impulse to act to be way stronger than the impulse to think about the consequences of that action.

My advice, find and respect each individual's normals. We have redefined normal to suit what normal is for us as individuals and our family.

Accepting what normal is for us had not meant that we just excuse away bad behavior. What it means is teaching our kids how to act appropriately in different situations. It means that we can acknowledge our own normal and set it aside when the circumstances demand.

Adjust your expectation



Once we accept where our child is, we have accepted our new normal, then we start adjusting our expectations. I start with the reality of where they are at. If it takes several hours for them to get ready in the morning I am not going to get that down to 10 minutes over night. I can, and have, slowly adjusted behavior. So maybe now the same child can work the coping mechanisms we have put in place together and get ready in an hour not three. If you start every days homework thinking this should only take a half an hour and 3 hours later you are still doing homework you are going to be frustrated and mad all the time. If you start saying this is going to take 3 hours and it only takes two you are going to be happy and excited. There are inherent traits of ADHD, ASD, learning disabilities, anxiety, SPD, depression, that will quite frankly be long arduous battles to gain the coping skills that will last and be used the rest of your child's life.

Pick your battles

Some things aren't as important as we think they are - we all have standards that need to be kept and reenforced but there are a lot of things that we can compromise on and work out to the benefit of ourselves and our kids. Home shouldn't be a minefield of expectations. Home should be a place to learn, understand, grow, and explore. It should be a place where you feel safe and understood. A place where it is okay to make mistakes, a place where we are given the opportunity to learn from them. As parents we have had to pick our battles keeping the long range goals in mind. If we take up every battle and nit pick the little things we will lose both the battle and the war.

Respect the way their brain works and create coping mechanism to meet your needs and theirs

writing homework in planner - not enough
I truly believe one of the greatest thing we can do for our children is figure out what their experience is, understand it, empathize with it, learn about it. Then help them learn to recognize and understand their experience so that they can communicate with you and others what that is. When we figure that out that we can begin to develop coping mechanisms, tricks, reminders, stopgaps that help manage the long list of traits and struggles that they are having. They will need those coping mechanisms and use them all their lives. The trick is they have to work for them, with them and their personality. It's easy as a parent to try and fix something by throwing what would work for us at our kids. Sometimes that may work but when it doesn't we need to look to our kids to voice possible solutions. Any system that we create as a coping mechanism is more effective with their buy in. It also trains them to problem solve for themselves, to recognize when they are struggling with something and seek effective solutions (long range parenting mixed with the here and now). Ultimately, it has to work for them, they have to use it, and we want them to be able to use it on their own when we aren't there to make it happen.

This is a long process of hits and misses. I have to remind myself to be patient as we always seem to figure out more systems that don't work than systems that do.

Discipline with learning in mind

In our home, sometimes, in fact I would say most of the time, our discipline doesn't look like discipline at all. It looks like teaching and learning. That is on purpose. We learned long ago that traditional method of discipline don't work at all. I remember more than one frustrating conversation after another (before I understood this principle) where I would lay out a punishment, "no TV." Countered by, "well, that's okay I have been meaning to watch less TV." I would add to the punishment no this, no that. Countered by mental adjustments making whatever punishment was given a good thing. Frustrating at best.

Then at some point I realized my goal was not, should not be to to punish. The goal, the thing I wanted was for them to learn. A long time ago our punishments changed. We don't do timeouts for set times, they are dependent on the kid and how long it takes them to pull things back under control. We use them as a reset button. As soon as they are calm and ready to talk and listen then we are done with punishment and ready to learn. Learning is the goal. We talk about why something was wrong, how to handle a situation differently, what to do, how to communicate. Whatever the situation requires so that next time we can achieve a different outcome.

Accept progress as progress even if it's a tiny bit - celebrate it!

Progress can be so slow that sometimes it doesn't feel like we're making it at all. Be watchful for progress, find it where ever you can and point it out, celebrate it. Especially when you are in the middle of disciplining and teaching because something went wrong find the ways in which your child has improved and point those out. Eventually you will look around and realize you are much farther up the mountain than you realized. They will see it too. One of that hardest battles our kids face is self esteem. The sense that they are less than others because of their struggles is evident to them all the time, even when no one is specifically pointing it out. It often leaves them feeling like they are broken. Who can effect change in their life when they feel broken? I don't believe anyone can. We need our kids to feel empowered, to know that they are brilliant, and that whatever problem that lies in front of them is not bigger than their ability to meet it head on and conquer it.

Encourage your child to engage in what they are passionate about in a healthy way

Pursuing the things that they are passionate about, sports, music, art, drama, science, literature, whatever it is, creates balance in our children and that translates into balance in our lives and home. It is important enough that despite pressing schedules we carve out time for them to engage in whatever their passion is. It feeds them the best things in life, confidence, creativity, empowerment, teaches them to set goals, to endure hardship and opposition, conquer failure and in the end find success. It gives them joy. It gives me joy as I watch them.

Enjoy your children

Don't allow yourself to be so tired or worn out by the day to day battle that you can't enjoy your children. Find ways to stop and enjoy the wonderful spark that makes them an individual. Laugh with them, celebrate them. Approach life with a healthy dose of humor. Our sense of humor is a lifeline. It is an anchor in our home and often the vehicle by which we use to teach most effectively.

In fact, as my husband is quick to point out there is nothing like humor in its ability to turn around a tense situation or meltdown.

We have a motto: Aro family making simple things hard. And when we have really made life more difficult than it has to be we drag out the motto and laugh at ourselves. We enjoy our impulsiveness, our creativity, our whims, our diversions. We laugh together, sing together, get frustrated together, make up parody lyrics together. Those are our things, your things will be specific to your family, maybe its have Nerf wars together or playing sports together, whatever it is do it and have fun doing it.

Make time to take care of yourself

Admittedly I am horrible at this, so my advice would have to be either do what I say not what I do or enlist friends and family to make you stop and get some time to yourself to retreat and regroup. I have great family and friends who drag me out of it all so I can keep perspective. I remember sometimes when my kids were all younger and life seemed very overwhelming I would put myself in a time out. That's right, realizing that my kids were just being kids not doing anything wrong, I would say to them, "Mommy is overwhelmed I need a time out." I would go take a few minutes where I had some space but could still be aware and hit my own reset button. I have found hobbies and diversions that help me cope, find more patience, more enjoyment, more love, more fun.

And as Dory says, "Just keep swimming!"

Just keep at it. I have hard days, I have times that I think we're not making any progress at all, I lose my temper. However,  I know that if I can just "keep swimming" I will be surprised how far we've come, how much progress we've made and how much fun we've had getting there. Our family is older now, I can look back and see with ease the things that have worked and the things that were disastrous failures. In the end, it is the guiding principles that have made the difference in our home, that have helped us find our own normal and embrace it. I have to say we've covered a whole lot of ocean by just following Dory's advice in Finding Nemo and we've had some great adventures. No doubt we have lots more ocean to cover, certainly some uncharted territory yet to explore, and undoubtedly more amazing adventures as we just keep swimming.

Tuesday, October 16, 2012

"I Did Something" Spreading the Word About ADHD Awareness

When I answered the phone my husband didn't even say hello.  The conversation started with, "I did something."  This is usually is the part of the conversation where I say, "How much did it cost?" But before I could respond he quickly informed me that no money was involved.

See, I had been talking about my plans for upcoming ADHD Awareness Week and he had an idea.  He works at a news station, you can see where this is headed, when he said he did something he meant he had sent out an email to the producers of their local talk show, Central Valley Today, informing them of ADHD Awareness Week and suggesting me as the perfect guest.


Yep, he definitely did something.  Then he back peddled a bit by saying that they might not decide to run a piece on ADHD Awareness, neither of us believed him.  It wasn't long before I got an email asking for information, talking points, and graphics regarding Queen of the Distracted and ADHD.


I want to thank Amanda Jaurigui, Alex Delgado and KSEE 24 for having me on their show Central Valley Today and for taking the time to air this piece on ADHD.  Our ADHD community is scattered around the globe.  Often families and individuals who don't know what kind of support is out there feel isolated and alone.  Every solid news piece, ever accurate article, sympathetic blogpost, and telling tweet allow more of that community to find the support, information, and help that they need.




Sunday, October 14, 2012

Our ADHD MESSage

I was sitting, waiting to get my hair cut, flipping through magazines for the perfect haircut when I saw this fantastic saying jump out at me from the sea of text and pictures.  "Turn your mess into your message."  Just then my name was called, I closed the magazine, got up and walked off.   I have no idea what magazine I was reading, no way of figuring out what brilliant person made that statement.  Those words have lingered, I haven't been able to shake them from my mind.  So, I decided to use it anyways because turning our mess into our message is what Queen of the Distracted has always been about.

Here we are, a family of nine. Myself, my husband, and our 7 kids.  That right there freaks most people out.  Then I tell them, but wait, that really isn't the messy part.  The messy part is that fact that my husband and 6 of those 7 children have severe ADHD and we seem to be doing our best to cover almost every co-occurring condition possible.  Sometimes reaching opposite ends of the same scale.  We have, for example, members of our family with sensory processing disorders.  In some strange twist of fate we have both those who are super sensitive to sound and one who is under responsive and tends to be very loud.  We have dylexics and I am pretty sure we have some undiagnosed hyperlexics.  

Regardless, of the labels and disorders we are a family doing our best to raise good children into fully functioning great adults.  As we started to walk down the path, discovering all these unique characteristics about our family, we found some things we didn't like.  We found stereotypes, myths, a lot of misunderstandings, and misinformation.  We seemed to be walking the path all alone, even though we knew there were many families like us dealing with similar issues.  Somewhere in between appointments at the psychiatrist for one kid or another and dealing with distraction, impulsivitiy, meltdowns, creative genius, and the need for constant positive stimuli we landed at a crossroads.  Do we keep living our lives, managing and growing our family all to ourselves or do we share our journey with the world and hope that it helps others as they work their way through life and their own unique challenges?

The answer was undeniable, we would share our lives in hopes that other families could find refuge in our struggles and triumphs.  In hopes that others wouldn't feel so alone.  In hopes that many could understand ADHD from real life place instead of technical scientific terms.  In hopes that they could find empowerment.

I am always grateful for the compliments people give me regarding the blog.  It keeps me, a rather private person, continually inspired to keep posting.  I appreciate everyone of those acknowledgements.  Today, though, I have been thinking about some unexpected gifts that have come to our family by sharing the antics, good and bad, with the world. 

Removing the shame and embarrassment of ADHD

I remember visiting with a friend at a reunion and as she spoke of her son's mental health issues her voice lowered to a whisper.  What she didn't know was despite her whisper he heard his name and attuned his ear.  He realized he was the subject of a hushed conversation.  She never saw his face but I did.  To me his face read shame and embarrassment.  She meant to talk in hushed tones to respect his privacy but in the process she inadvertently sent a message that his situation was not one to speak openly about.

It is important that our kids, no matter what they may struggle with (and everyone struggles with something) never come to a place where they feel that they are broken.  I don't care who you are, what your trial is, we all need to feel empowered to be successful.  If we teach our children, directly or inadvertently, that they're broken then how are they supposed to fight to overcome their challenges.  In addition to controlling the message that we give our children we have to fight the messages they get from their peers, from other adults in their lives, from the world.  It's a constant battle.

One way that our message has influenced our mess is by letting our kids know that we are not ashamed of them, that their disorder is just a challenge and that as they work on it they will learn to manage it.  It has been a forum for us to show our children that challenges are just stepping stones to success and to show them that their are many aspects of their ADHD that make them fantastic people.

Growth through self-examination and communication

It was my husband, Mark, who pointed out that the blog has helped us to use our experiences for growth.  We discuss what I write about on the blog as a family all the time.  It gives us the opportunity to break down different situations and rework how we might handle them differently.  That communication is a hallmark in our home and has had the most influence on how our kids are turning out.  In fact, we communicate so much with our kids that it often freaks other people, especially their friends, out.  I can't tell you how many kids have come through our home and said, "You talk to your parents about that?" in bewilderment.

All kids, but especially ADHD kids need to talk things out.  They need to understand how things work and why they work certain ways, it helps them to control impulsivity that is central to the disorder. We sometimes joke about the different phrases our kids approach us with that mean we're in for a long night.  "I have a question," "do you have a minute," "I was wondering," all mean I need help setting the world straight and understanding things that totally escape me.  I think during a couple of one daughter's more difficult years there wasn't a night that we got to bed before 2:00am. However, I wouldn't trade it for the good nights sleep, she landed square in the middle of some deep potholes on her path, but avoided many and I'm sure she avoided some situations that could have led to legal trouble all because of those late night talks.

There is so much that we've been able to help our kids through because they're used to communicating with us and are able to come to us for help in coping with situations and conflicts.  There is so much that the rest of the world takes for granted as innate understanding that ADHD kids and adults have to work at understanding.  It's our job as parents to help them learn those skills; communication is key to learning as is being able to deconstruct situations. 

Our message has given us a great tool for using our mess as a teaching tool.

ADHD awareness turns into self awareness

ADHD is tricky, though it's underlying causes are the same, the way in which it really manifests itself often varies, it's completely individual.  For example all of my ADHD kids and my husband struggle with inattentiveness but there struggle looks different from the outside.  One child embraces that inattentiveness entirely and really doesn't stress about it at all.  Another obsesses about it and quadruple checks everything.  One should be more concerned, the other should relax more. 

Understanding how their brains are wired, the experiences they are having, gives them a platform from which to dive into managing it.  They each have to be aware that they are inattentive, or impulsive, or whatever quality they're struggling with at the time and how that manifests itself in their own life so that they can figure out ways that work for them to combat it. 

Our message shines a spotlight on our actions, encourages self awareness, self acceptance, and growth.  Our message helps us acknowledge and manage our mess.

I had a dream the other day that we were living in one crazy apartment complex where our kitchen window, which had no glass in it, opened up onto a thoroughfare of complex activity.  When that window was open people could see straight into our kitchen, they watched what was happening in our house, freely would stop by and visit all while gazing into my kitchen.  My kitchen is never clean, despite heroic, monumental efforts, it's never totally clean.  I felt a little awkward with my messy kitchen hanging out there for all the world to walk by and see.  No one mentioned the mess.  That's not why they stopped.  They stopped to be apart of our family, to share in our love and acceptance, to become a part of our mess and our message.

I am fairly sure I had this dream because I am going to be on a local television station tomorrow to talk about ADHD Awareness Week.  I'm nervous.  One thing that our message has taught me is that from our mess there is a valuable message shared.  One that can only be shared by making ourselves a little vulnerable and honestly opening our lives to other.  Truth is, the risk is worth it for us, for our children our message has changed how we handle our mess for the better.

In honor of ADHD Awareness Week I am going to be posting daily, make sure you check back for the latest.  At the end of the week our family has a big announcement to share with you!





Saturday, July 2, 2011

Please, No Memorial Day Repeats

As we are approaching the 4th of July I can't help but find myself pleading with Heaven that we don't repeat our Memorial Day mayhem.  The injury was not all that bad but the drama surrounding it wore me out.

It all started with a little obsession.  Weed eating.  My son had made a deal with his father; a video game in exchange for weeding around the house.  This was a big deal.  Hunter became the very definition of hyper focused.  I would never have guessed that, as a parent, I would have to tell a child to stop doing a chore but he was obsessed.

No, Hunter, you may not weed eat in the rain with an electric weed eater.  No, Hunter, you may not weed eat at the crack of dawn.  No, Hunter, you may not strap a flash light to your head and weed eat in the dark.

He was freaking out.  Late rains in the season and weed eater malfunctions were tripping him up.  He was sure that the weeds he had already whacked were growing again.  Finally, all things combined in his favor and we let him back at the yard.  The problem, once he started he wouldn't stop.  We were trying to keep him hydrated, and make him eat.  We finally had to pull the plug and make him stop.  He was very upset.

I consoled him by sending him to the shower, one of his favorite ways to calm down when overstimulated, and telling him to get a snack when he was finished.

He took his shower and headed straight for the peanut butter.  He and his oldest sister are obsessed with peanut butter, they could both eat it all day.  She, however, is much taller and to preserve it for herself stashes it on the top shelf of the cabinets in the kitchen, high above the counters.  Hunter is used to jumping up on the counters to reach it.

This time his aim was off.  He gouged his head on the cupboard corner.  Heads naturally bleed easily and his hair was still dripping wet from the shower.  Blood went everywhere.  Screaming filled the house.  It should be mentioned that Hunter, in addition to ADHD, is very obsessive.  In fact, he has self proclaimed "safety issues."  This is the boy that told me he saw the jaws of life on a TV show and thinks we should get a set for the trunk of the car "just in case."

This is the wrong child to have blood pouring down his head.

We spring into action.  Mark, the first aid guru, goes to look at the wound.  Fernie is trying to help calm Hunter down.  Jaren, who has quite a history with stitches, is lending his support.  I am trying to find my shoes, phone, keys and thinking about how long the ER wait is going to be for a minimal head wound on Memorial Day.

In the mean time I catch wind of an argument brewing.  Hunter's two oldest sisters are arguing over who is going to the ER with him.  Rachel is complaining that Mariah always goes.  It's true, she does, she hates worrying about people that are hurt and not being there to know what is going on.  Waiting is bad, waiting at home feeling helpless is worse.  Consequently, she has been present at nearly everyone in the houses traumatic moments.  It is a favor, really, to all those that would have to sit at home with her and endure her freaking out if she were left home.

Rachel, is so socially deprived by living in the secluded foothills, that the ER on Memorial Day seems like a great way to interact with society.  Clearly, I need to get her into town more.

I hesitated to take them both, the last time I did that was when Rachel went for torn ligaments.  She was so annoyed by her sisters inability to wait that she tried to safe surrender her to the workers in the ER.  "Is there an age or size limit on the safe surrender?"  Rachel asked the man at the admissions desk.  He looked very supportive and understanding as he started to explain the policy. "Cause, I want to surrender her."  she said as she pointed to her then 16 year old sister.

Both girls are now following me around pointing out why they should be the one to go with and how they have Hunter's best interest at heart.  Mary runs by with electrical tape.  Mark is applying direct pressure.  Hannah is serving up cheese cake and peanut butter, feeding the traumatized masses.  Mary is looking for paper towels.  The girls are still arguing.  I don't think Hunter wants either of them to come at this point.

He wants his Dad and Fernie.  Fernie, went with us when he had to have his eyelid stitched up because he ran into another scout.  Fernie, attentively talked about different weapons for hours while we traveled to the ER for that set of stitches and kept Hunter calm. 

I keep telling to girls to stop arguing, it doesn't matter who is going at the moment.  I am trying to call a friend who is a nurse to see if she can look at it.  I am thinking, I really don't want to go to the ER on Memorial Day, spend hours at the bottom of the injury totem poll, and contract some other evil illness that is waiting patiently for me there. 

Mary announces that she has fixed the cupboard, making it safer.  Hannah, hands me cheese cake, that is my weakness, definitely a comfort.  She hands Hunter cheese cake and a huge spoonful of the elusive peanut butter.  The girls are still arguing.

Donna, the nurse, answers the phone.  Thank goodness, she had just gotten home to our remote neighborhood, divine timing for sure.  The girls are still arguing as we pull out of the driveway to have her check his wound.  It is small, Mark tells me, but a little deep. 

Thank goodness she was home, she spared us an ER visit with sound advice and good instructions.

No one went to the ER.  Mariah didn't have to worry.  Rachel missed the stimulating social interaction, but lived.  Hunter's head stopped bleeding and he happily ate his peanut butter.

Everything went back to our normal dull roar of chaos.  Soon you could hear me say, "No, Hunter, you may not weed eat with a head wound."

Tuesday, February 16, 2010

Studebakers and Bullet Trains

It has been an interesting year and a half.  You know that they say you never realize what you have until it’s gone.  This last year and a half we have been deep in pre-production, then production and now post-production of a feature film and Mark has been mostly GONE. Boy have we learned some stuff in his absence.During production everyone got to help. 


It was a family affair as our 3 oldest girls finished school a month early so that they could work as production assistants for their father on the film.  They got to rub elbows with the actors, distress clothes, gather props and wardrobe, dress sets and break down when everything was finished.

Post production is very solitary work; there is just a bunch of editing, re-editing and special effects to attend to.  Consequently, Mark goes from his day job straight to the studio he shares with his brother where he works as long as he can keep his eyes open and then sleeps at the studio.  He is only home on the weekends, with the occasional exception of a birthday or emergency.

As it turns out Mark provides a great deal of balance to the house.  I think it is because, as he puts it, he speaks the native language, the language of ADHD (Attention Deficit Hyperactivity Disorder). There are many times where he can understand, comfort and motivate in a way I can’t seem to achieve because he understands, really understands, the way a majority of the members of this house think and operate in their surroundings.

In his absence I am overwhelmed and overloaded.   The kids are struggling to find balance and communicate with me, who has very limited ADHD language skills.  I have really tried over the years to understand the way that Mark and our ADHD kids think, because there really is a difference in the way that we think and process information.  Despite my efforts I do not fluently speak the native language.

Every dark cloud has its silver lining.  We, the kids and I, are forced to better speak each others languages so that we can function, each other’s language. This is the key here and was the topic of much discussion this weekend.  Which resulted in what I thought was an excellent analogy.

Studebaker's and bullet trains, as you probably guessed I am in the Studebaker.  That is where Hannah and I mosey along the road taking in all the detail, enjoying a quiet peaceful ride, enjoying the view in its entirety.  The bullet train is, of course, traveling along with Mark and the 5 ADHD'ers in it at break neck speed.

Mariah argued that there is plenty of detail to be found on the bullet train, there are bug guts all over the windshield that can be seen in great detail.

Mark made the point that a lot of detail is lost because of the sheer speed at which the bullet train travels; comparing Rachel and Hannah and their reading skills.  It was quickly agreed upon that though Hannah and Rachel both read very quickly Rachel would finish a book faster if they started at the same time.  It was also agreed, as pointed out by Rachel, that Hannah would remember and comprehend more because Rachel skims the page and Hannah reads every word.

The problem in our house is that the bullet train keeps cutting off the Studebaker, they run right over us.  Enjoying the fast paced ride they rarely realize the offense, rarely stop to check out the damage, and rarely fix what has been broken.

It was interesting to listen as my husband explained the difference in these terms.  One thought, Hannah and I think that one thought in its entirety, from beginning to end (at least we try to).  One thought for his brain, for Rachel, Mariah, Mary, Hunter and Jaren’s brains is never one thought.  It opens an array, as he put it, in which every possible thought connected with that thought and a few that are not attached are explored in milliseconds.  It is its own conversation.

 Meanwhile, Hannah and I are still on the one thought, we are waiting to have the rest of the conversation and they are already done with it.  Anything we say or add is annoying because they have, mentally, already been there done that.

Their annoyance becomes obvious.

It was enlightening to our ADHD teenagers, especially Mariah who really has thought for years that the world was out to annoy her by telling her things that she already understood.  In fact, she put it just that way...





“You mean they aren’t trying to annoy me... they aren’t insulting my intelligence by continuing to talk about something I already get.”





It was a harsh reality as they started to recognize the side effects of life on the bullet train. 

Ironically, even as they were trying to rectify the situation and slow things down to listen to Hannah they kept interrupting her and then reminding themselves and her that they were going to let her express herself.  She must have restarted her thought about 20 or 30 times.  Fortunately she doesn’t have ADHD; she was able to keep track of what she was saying despite the interruptions.

Over the years I have made considerable effort to understand the way my ADHDers communicate and try…TRY to communicate in a way that they understand.  My husband, likewise, has made great efforts to communicate the way I do.  The result has been very positive for us.

He explained it to our kids like this; there are customs and cultures that come with any of the different languages of the world.  In a sense ADHD and non ADHD are like different languages, we NEED to learn to speak each others languages - each seeking to understand the differences and needs of the other. Learn to respect them, honor them.  That is hard to do while riding on the bullet train but it can be done.

More directly Mark said, “Just because you may already know where the Studebaker is going, it does not mean you have to spoil the ride for those that can't ride on the train without getting nauseous.  There is something of value on both paths and there is always something that can be learned from both means of transportation... it is the fool that is unwilling to consider both as viable and beneficial.  You may prefer one over the other, but if you want a true adventure, try the road less traveled now and then, you may actually learn something.”


Truth be told it takes great effort for those used to the bullet train to slow it down to the pace of the Studebaker.  Certainly it takes equal effort for those of us who like the Studebaker to brave the speeds of the bullet train and try to hang on for the ride.


...In the end we will all be better for it.

Tuesday, January 5, 2010

The Great Composer Strikes Again

Mariah - the source of inspiration for the 'Oh yes she did just say that" has always had a terrible time communicating - you wouldn't know that now so much but she did. In fact, I am sure that some of her extreme humor and quick wit is to deflect what she really has a hard time expressing. When she was smaller she really could not communicate at all and she was a tightly wound ball of extreme stress. At 7 her grandfather introduced her to the flute to give her an outlet for her stress - something else to occupy her mind.

 
 She found in that moment an
instant ability and passion for music. 

It was not long and she was tugging at my shirt playing something she had created followed by, 'and the french horn will play this and that will play this.' Now before you think I am raising a total Bach or Mozart let me tell you that while she does compose incredible music she also has a little weird Al in her so you never know when she calls you in to hear something whether it is going to be a Bach moment or her personal rendition of Weird Al's Albuquerque.


Yesterday (while I was begging her to clean clean clean) she was coming up with new lyrics for Hey Diddle Diddle for our two Australian Shepards. So from the composer of The Attack of the Corn Martians and Me and My Llama we have a new and improved Hey Diddle Diddle now being sung by all...ALL...over and over and over again (I would say there goes what's left of my sanity but you know - long time ago!)

Hey diddle diddle Sid's not very little she weighs almost 70 pounds
she jumps on my lap and licks me on the face
and I beg her to get on the ground

Hey diddle diddle watch Pepper piddle anywhere he wants to go
he thinks he's the boss just cause he's a man
but he's just a baby you know


If you want to hear a more serious song she composed Mariah and her sister, Rachel, formed a band together called The Bliss Method and on their website is one of the songs they have recorded. Rachel is the vocalist and Mariah wrote the lyrics and composed the music. The website is blissmethod.com and the song is Border Patrol under music.

As a side note it is music that over the years has allowed her to cope with her stress. It is music and performing in front of people (squarely behind the music stand at first) that gave her the confidence to actually speak in front of people. It is music through which she often speaks her mind first and finds the words to express herself. Everyone has a music - the trick is finding it and using it. For Rachel it is art. I often say that Mariah breathes music like Rachel breathes art.