Queen of the Distracted

Imagine life in a house with 6 kids - now imagine if 5 of those kids and their father have ADD/ADHD (Attention Deficit Hyperactivity Disorder) - that is our house! Welcome to an inside view of my life and our home dominated by ADHD... THERE IS NEVER A DULL MOMENT!

Ladies and Gentlemen! Boys and Girls!

"Ladies and Gentlemen, Boys and Girls!"

Those were our oldest daughter Rachel's first words, from the time she was a toddler she would belt them out proudly standing on the arm of the couch. At the time we had no idea what ADHD was or that it would play such a central roll in our lives.

Since then we have learned a lot, not the least of which is how many individuals and families suffer in silence. We have experienced first hand how misunderstood and misrepresented a disorder can be.

As a family we decided to take action - to risk embarrassment and labeling to get this important message out to the world. Come join our family, share in our lives, and see ADD/ADHD as we see it...
A gift with a heavy price tag.

WELCOME to life in the ADD/ADHD House!

Showing posts with label hyperfocus. Show all posts
Showing posts with label hyperfocus. Show all posts

Thursday, December 20, 2012

Dear Adam Levine, Thank You for Owning Your ADHD

We gathered as a family to watch the end of The Voice the other night.  But in my opinion the most important moment didn't come when all the superstars sang, or when they handed out keys to new cars for the finalist or even when they announced the winner.

As the mom to 6 ADHD kids (7 kids in all) and wife to an ADHD husband the most pivotal moment of the evening came as they played a video of Adam Levine playing the piano, the drums, the guitar, whistling, talked about him playing the accordion, and showed him singing.

In that moment one of my kids reminded everyone that Adam Levine had ADHD too. There was a level of pride filling the room.  "He's just like us." one said.  Another added, "you know it's because of his ADHD that he has to play all those instruments, that he's good at all of them!"  They know that drive, the unquenchable force that pushes you past distraction, past focus, and lands you on the positive side of hyper-focus.

and drums, basses, electric guitars & flutes
The excitement, the acceptance, the hope in that moment was tangible.

There are many successful ADHD people out there, more and more of them are coming forth and owning their ADHD.  I wonder if they will ever know the impact they have on the upcoming generation of kids with ADHD.  Those kids and struggling adults can find they have potential in the success of another person.  To struggle through school, through feeling different and awkward, through trying to master coping mechanisms, and find a way to use all this energy and potential seeing someone's success is a beacon, it's proof it can be done. Instead of just seeing all the things they aren't, they catch a glimmer of all they can be.

Every successful person who comes forth and owns their ADHD is important in the life of others who struggle with the same issues no matter what walk of life their success is in.  Adam Levine hits home in my house because he's creative.  Creative is what we do, art, music, singing, acting, writing, film, animation to see a successful person with ADHD inspires them towards their own greatness.

Stigma, shame, embarrassment, the threat of being judged by negative stereotypes for admitting your ADHD are real. The world would have us hide anything that is different or imperfect.  Ironically, the only way to change those negative stereotypes is to take that risk, to face that fear, and be bold about our disorders in front of the world until those walls are broken down.  Then, fear, stigma, shame,embarrassment, negative stereotypes can be replaced by knowledge and understanding.

There is no doubt that ADHD is a mixed bag.  There are struggles, endless struggles; but, there is greatness also.  Thank you Adam Levine for being willing to show both sides to the world.  Thank you to all successful people who stand up and own it.




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Monday, November 26, 2012

An Inheritance from the Distracted King - Mastering Hyperfocus

Besides inheriting their ADHD from their father, the Distracted King, our children are benefiting from his years of experience and the many coping mechanisms that he has found to pay the heavy price tag of ADHD and open the great and marvelous gifts which it offers.

The King and I were talking today about hyperfocus, a quality of ADHD that can easily hijack the mind making it easy to get lost in ideas, creative ventures, and activities.  The conversation was inspired by a wonderful blogpost I read written by Zoe Kessler for Psych Central called A Hyperfocus Balance Sheet: Is Hyperfocus Worth it?  A wonderful breakdown of pros and cons to hyperfocus.  In the discussion the King said he considers hyperfocus one of the greatest qualities he gains from his ADHD.  It has taken a long time to get the balance just right, to master it rather than it controlling him, but now it's an asset that he uses in many aspects of daily life.

The benefits to my husband and our family are really hard to quantify but I have pinned down specifics of this sizable inheritance beyond the obvious financial benefits we have gained from his successful career.

The King has taught them to use hyperfocus to accomplish an unwanted, even hated task.  One of the hardest things for the ADHD mind to do is focus on something boring, uninteresting, or undesirable.  Unfortunately life is full of such tasks. Right now, for our kids, school is full of such tasks.  The King uses something that his mind wants to hyperfocus on as a carrot to get through the mundane and irritating.

We have a son, now a freshman in high school, who is a grammar freak.  Until we had him diagnosed with ADHD and medicated in the 1st grade he couldn't remember his alphabet. Then, like someone turned on a switch, he started reading.  Within a couple of months he was reading at a 6th grade level and much to the chagrin of the teachers and office staff he was correcting the spelling and grammar of the school newsletter and returning it each week.  Now this same son had to read a book in honors English, House on Mango Street.  It has been several months and he still randomly breaks out into rants about how horrible that book was to get through.  Why?  It has no grammar at all - just one run-on sentence.  The boy who can sit down and read a 400- 600 page book that he wants to read in a day or two was struggling to get through a page.

With the help of his father he learned how to hyperfocus on the task he didn't want to do so he could get to the one he wanted to do.  Reading chunks for the reward of reading chunks.  Important to note that you have to set limits on your pleasurable hyperfocus or you will easily get swept away.  In this case it was pages or chapters, sometimes it minutes or hours.  Today he used those same skills to write an essay for the same class.  Each time he uses the skills he is learning about managing his focus and engaging the ability to hyperfocus he is able to do more and more on his own without the Kings help of guidance.

The King has taught them how to establish a state of hyperfocus, how to get into the groove.  Getting into that hyperfocus state of mind is easy when it's where your mind wants to go but when it doesn't want to go there it can be very difficult.  The King has certainly proven it can be done.  He has also passed the process onto our children. Recently we found out we had to move, the King took one of our daughters out to the garage, surveying it he said to her, "Mary, I need to know what is in this garage.  I need someone who can get lost in this job."  Other than a few parameters he didn't tell her how to do the job. She strung up Christmas lights, found an old boombox we thought was dead forever, fixed it, blasted music, created a system for finding and cataloging everything in the garage, and went to town.

As each day passed she employed the first lesson listed above by doing other chores that needed to be done and then headed back to the garage.  The King is still teaching her the lesson, helping her learn to take breaks, praising her work and progress, helping her see the value of the time and effort she is putting into the task, and satisfaction of finishing a long hard job.

Important to note that the King didn't dictate how she got into the groove of hyperfocus, that is a very individual process that changes for each person and each task.

The King has taught them there is a time to stop - pull yourself from the groove and pay attention to other things in life.  It took the King years to learn this and personally I would like to think that I had a little something to do with it.  Just like he would go out the garage to help Mary learn to monitor and balance her ability to hyperfocus I have helped him, over the years, to see when he was loosing perspective.  This has probably been one of the harder lessons to learn but he has really come to a place of where he can pull himself from that hyperfocus state and enjoy the world around him.  Having both the ability to put yourself into that frame of mind and take yourself out of it allows you to use it daily, finishing  small projects and making marked progress on long ones.

Part of learning it and teaching it is learning to recognize what you need and what those around you need.  While getting his focus ripped out from under him is hard - he even describes it as painful, he has learned to communicate it and teach ways to cope with it to our kids.  Being self aware and being able to express it to others helps them understand where you are coming from and what they can do to help.  He consistently includes them by asking them to look at something he's working on and for their critique.  When our rather random house is firing distractions like a war zone he asks for their help in keeping his focus.  He often says I can't think about that right now but let me get to this point in my work and my attention is all yours.

The kids have become very good at being equally self aware and expressive.  As they vocalize their struggle between what they need to be doing and the multitude of ideas that flood them we can help them manage the way their brains work while they learn to manage it themselves.

Most commonly we see this manifested in the uncontrollable need to write down an idea, record a melody, or draw an inspired picture.  He has taught them to jot down notes or record ideas quickly and then get back to the required task at hand.  He has taught them that even though it is hard to wait they can.  They can remember the inspiration and act on it in the appropriate time.


The King has taught them that you can include others in your hyperfocus state, making it not such a solitary quality.  Their are aspects of his job that are not very inclusive.  We can't all sit around and edit a film or draw the same picture.  He includes us in the source of his hyperfocus by including us where he can.  More than just asking our opinions he has pulled us into his world and activities.  When he worked on a film a couple of years ago our family became intimately involved.  Our older girls were production assistants, the younger ones acted as extras, we were often on set if nothing else just to watch and be there with him.  We write stories as a family, make movies, deeply discuss art, literature, and music.  He proves all the time that hyperfocus does not need to be a solitary place, in fact it can be very inclusive as we look for ways to share our joys and obsessions.  Many of our fondest memories revolve around getting lost together in a wonderfully creative world come to life.

It has passed along to our children and they are know to come and share their inspiration with us and involve each other in their creative endeavors.  Fernando asks Hannah or Rachel for drawings of characters for his story, Mariah has Rachel help her with lyrics and has her sing her songs, Rachel takes lyrics to Mariah, they help each other with plot ideas for stories and movie, they share and pull others into their process.

The King as taught them that there is a satisfaction that comes in finishing, a confidence that carries you through to the next hard thing to conquer that requires the ability to hyperfocus.  When our daughter Mariah was about 15 she was already heavily into the world of composing music.  I think she fell into that world from the moment she took her first music lesson at 7 years old.  At 15 he had a tall order for her though.  He needed a song written for a movie he was working on - one that she could write and she and her sister could perform.  A song that would play during a movie scene where one of the characters, a young gang kid, is considering suicide.  He pulled her into his hyperfocus, spinning her off into her own.

It was a hard thing to do, she had to use all of the skills mentioned above to complete it. She had to pace herself and find balance using hyperfocus on a consistent basis to complete a task.  She had to put herself into that hyperfocus state when she didn't necessarily want to finding a process to do that, a place to best work, set the mood for herself.  She had to communicate when she needed help following inspiration because it finally hit.  Often she had to find ways to hold onto the inspiration and set it aside until she could work on it at the appropriate time and place.  Sometimes she needed help pulling herself from that place back into the flow of life.    It wasn't a song she ever would have written on her own, it was dictated by the script and mood of the film at that moment.  But she did it.  How priceless is the knowledge that you can apply yourself to a task that isn't what you would choose to do, one that is hard and painstaking, and you can finish with high praise.




ADHD is a life long disorder, the way their brains are wired is not going to suddenly change. They will struggle with how to manage and use the qualities of ADHD to some degree all their life but every bit of ground they gain, every bit of understanding, every tool they acquire changes what their future looks like.  They are fortunate that the Distracted King is there to lead the way, that he embraces his strengths and weaknesses and strives to show them that they can work on them everyday because he works on them everyday.  In the end is there really any inheritance more valuable than that.

*The song, Smoke and Mirrors, is written by Mariah Aro with help from her sister Rachel and performed by Rachel Aro with harmonies by Mariah.

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Saturday, July 2, 2011

Please, No Memorial Day Repeats

As we are approaching the 4th of July I can't help but find myself pleading with Heaven that we don't repeat our Memorial Day mayhem.  The injury was not all that bad but the drama surrounding it wore me out.

It all started with a little obsession.  Weed eating.  My son had made a deal with his father; a video game in exchange for weeding around the house.  This was a big deal.  Hunter became the very definition of hyper focused.  I would never have guessed that, as a parent, I would have to tell a child to stop doing a chore but he was obsessed.

No, Hunter, you may not weed eat in the rain with an electric weed eater.  No, Hunter, you may not weed eat at the crack of dawn.  No, Hunter, you may not strap a flash light to your head and weed eat in the dark.

He was freaking out.  Late rains in the season and weed eater malfunctions were tripping him up.  He was sure that the weeds he had already whacked were growing again.  Finally, all things combined in his favor and we let him back at the yard.  The problem, once he started he wouldn't stop.  We were trying to keep him hydrated, and make him eat.  We finally had to pull the plug and make him stop.  He was very upset.

I consoled him by sending him to the shower, one of his favorite ways to calm down when overstimulated, and telling him to get a snack when he was finished.

He took his shower and headed straight for the peanut butter.  He and his oldest sister are obsessed with peanut butter, they could both eat it all day.  She, however, is much taller and to preserve it for herself stashes it on the top shelf of the cabinets in the kitchen, high above the counters.  Hunter is used to jumping up on the counters to reach it.

This time his aim was off.  He gouged his head on the cupboard corner.  Heads naturally bleed easily and his hair was still dripping wet from the shower.  Blood went everywhere.  Screaming filled the house.  It should be mentioned that Hunter, in addition to ADHD, is very obsessive.  In fact, he has self proclaimed "safety issues."  This is the boy that told me he saw the jaws of life on a TV show and thinks we should get a set for the trunk of the car "just in case."

This is the wrong child to have blood pouring down his head.

We spring into action.  Mark, the first aid guru, goes to look at the wound.  Fernie is trying to help calm Hunter down.  Jaren, who has quite a history with stitches, is lending his support.  I am trying to find my shoes, phone, keys and thinking about how long the ER wait is going to be for a minimal head wound on Memorial Day.

In the mean time I catch wind of an argument brewing.  Hunter's two oldest sisters are arguing over who is going to the ER with him.  Rachel is complaining that Mariah always goes.  It's true, she does, she hates worrying about people that are hurt and not being there to know what is going on.  Waiting is bad, waiting at home feeling helpless is worse.  Consequently, she has been present at nearly everyone in the houses traumatic moments.  It is a favor, really, to all those that would have to sit at home with her and endure her freaking out if she were left home.

Rachel, is so socially deprived by living in the secluded foothills, that the ER on Memorial Day seems like a great way to interact with society.  Clearly, I need to get her into town more.

I hesitated to take them both, the last time I did that was when Rachel went for torn ligaments.  She was so annoyed by her sisters inability to wait that she tried to safe surrender her to the workers in the ER.  "Is there an age or size limit on the safe surrender?"  Rachel asked the man at the admissions desk.  He looked very supportive and understanding as he started to explain the policy. "Cause, I want to surrender her."  she said as she pointed to her then 16 year old sister.

Both girls are now following me around pointing out why they should be the one to go with and how they have Hunter's best interest at heart.  Mary runs by with electrical tape.  Mark is applying direct pressure.  Hannah is serving up cheese cake and peanut butter, feeding the traumatized masses.  Mary is looking for paper towels.  The girls are still arguing.  I don't think Hunter wants either of them to come at this point.

He wants his Dad and Fernie.  Fernie, went with us when he had to have his eyelid stitched up because he ran into another scout.  Fernie, attentively talked about different weapons for hours while we traveled to the ER for that set of stitches and kept Hunter calm. 

I keep telling to girls to stop arguing, it doesn't matter who is going at the moment.  I am trying to call a friend who is a nurse to see if she can look at it.  I am thinking, I really don't want to go to the ER on Memorial Day, spend hours at the bottom of the injury totem poll, and contract some other evil illness that is waiting patiently for me there. 

Mary announces that she has fixed the cupboard, making it safer.  Hannah, hands me cheese cake, that is my weakness, definitely a comfort.  She hands Hunter cheese cake and a huge spoonful of the elusive peanut butter.  The girls are still arguing.

Donna, the nurse, answers the phone.  Thank goodness, she had just gotten home to our remote neighborhood, divine timing for sure.  The girls are still arguing as we pull out of the driveway to have her check his wound.  It is small, Mark tells me, but a little deep. 

Thank goodness she was home, she spared us an ER visit with sound advice and good instructions.

No one went to the ER.  Mariah didn't have to worry.  Rachel missed the stimulating social interaction, but lived.  Hunter's head stopped bleeding and he happily ate his peanut butter.

Everything went back to our normal dull roar of chaos.  Soon you could hear me say, "No, Hunter, you may not weed eat with a head wound."

Tuesday, March 22, 2011

20 Years Today

When my husband called and told me that the last day to work on "the film" (Finding Hope Now) before the latest version was sent off to be screened at the Houston WorldFest International Film Festival was the 23rd of March I laughed out loud.  How very fitting that our 20th wedding anniversary would be the day before probably one of the most significant deadlines of my husband's career.

Fitting, because he is an artist and has worked in various fields of the entertainment industry most of our marriage.  An industry always in a constant state of emergency and deadline.  We called it "crunch" mode when he worked in the platform/computer game industry.  The give it all you have -- work endless hours to meet the deadline --  time.  Fitting, because so much of our marriage has been spent in "crunch" mode.

So, tonight he will be at the studio doing the visual effect for the "retaliation" scene and I will be here with the kids.  We are meeting half way between our house and the studio for an anniversary kiss at 4:00pm.  And making plans to celebrate our 20th on another day.

I am sure there are people who could not or would not understand me being okay with the situation so let me explain. 

First of all, I think this might be a perfect example of how ADD/ADHD  is interwoven through our life and marriage.  People talk about "normal" but really normal is whatever patterns we create in our own life.  Normal is personal.  If we were to approach life trying to meet other peoples' standard of "normal" we would be constantly frustrated and unhappy.  It would be like trying to fit the round peg into the square hole. We have unique challenges in our marriage because of ADD/ADHD and have to have unique solutions to match them.

Mark, my husband, has learned how to wield the power of hyper-focus like a sword but when he is in mindset that allows him to stay on task he has to really stay in it. Meaning, he has to hold onto that state of mind with both hands.  He can't go in and out of it and maintain it.  As a result, he would rather work hours on end to accomplish a task than an hour a day for several days to accomplish the same task.

Half the battle with ADD/ADHD is learning how your individual brain works and use that to work smart.  I could say I have to have him work on my schedule, on a "normal" schedule, but in reality it would not work for him.  It works against his brain and the way it functions.  So, we compromise.  We use that hyper-focus to be successful and we bend our family around what works for us.

For years that has meant working his regular hours, then having family time, then back to work or time for personal projects when the house was quiet.  Mark is a doer, another ADD/ADHD trait.  He is not satisfied to sit and do nothing.  That probably has to do with the millions of ideas that are his constant companion.  Even when he has had time in the evenings, like he has since he started working at the news station, he cannot just sit. 

We were laughing just today that even his work station is set up to multitask (very ADD/ADHD concept)  he has dual monitors on his computer system.  He has a mouse hooked up to be used with his left hand and a Wacom drawing tablet hooked up to be used with his right.  He can use the mouse and draw carrying out tasks on both screens at nearly the same time.

We adjust to meet different circumstances, different commutes, different jobs.  The key being here that we adjust.  We also have an agreement that family takes priority, so even if Mark is working and in the groove of what he is doing he will stop and be there to help put the world back together for a worn out wife, traumatized teens, or anxiety ridden little ones.   Whether it is face to face, on the phone, text, or by email we stay in close contact. 

Through those now 20 years of marriage there has been a constant theme.  I keep Mark from floating off into the atmosphere and he gets my feet to leave the ground every once in awhile.  He has arguably been given the harder task.  In the middle, we find balance of sorts, hovering just above the ground. 

I have discovered I can wait, I am not that good at it, but I can do it.  This cause, this movie, which has been our lives for the last 2 1/2 years is worth pushing off the celebration of those twenty years.  It marks a milestone in Mark completing a life long goal to work in film.

The anniversary gift, the biggest one, is to see this long planned passion and goal come to life and be recognized.  The ultimate gift is that at the end of the week the studio, about an hour away form our home, gets dismantled and reassembled in our house.  No more commuting home only on the weekends.  There will be new adjustments, a new normal to create but I am rather looking forward to this one.  Maybe the best anniversary present yet.